Wednesday, June 29, 2011

Health Insurance and Answered Prayers.

It's amazing.  Amazing to me, that no matter how many times the Lord proves Himself faithful, no matter how many times He shows up at the perfect time.  Still I struggle.  I struggle to trust, I question, I worry.

Just last night, Conor and I prayed together and asked the Lord to help us trust His plan as we wait on Him, especially as it relates to our health insurance.  We have health insurance, so I realize that makes us very fortunate, as Conor is working two part-time jobs (both of which he loves and it is very evident that this is where the Lord has him right now).  However, we're paying for our own health insurance out of pocket.  I'm sure you can imagine, it's very expensive when you have two family members with a degenerative disease.  Like almost a mortgage payment expensive.

We're grateful to have it, but it's certainly not ideal and hopefully not a long-term plan.

Today a letter arrived.  Conor has to get his health insurance separately from the rest of us and as a rule it's double an average premium for someone his age.  Well, the letter explained they are going to offer a subsidy which will reduce our premium for Conor's insurance by up to 50%.

The very next day.  Should I be surprised?  Obviously, our health costs will still be expensive even with Conor's premium cut in half, but I feel like it was the Lord's little way of saying
"I've got this.  Relax.  I'm taking care of you in little and big ways.  Just keep trusting Me.  I'm worthy of your trust."

My manna for the day.

He is so good to us.  So so good.





Sunday, June 19, 2011

To My Children's Father

I love the way you love God and pursue a heart like His and the way you want to teach that to our children.

 I love your humility and that you're never afraid to tell our children that you made a mistake.

I love the way you jumped in from day one, changing nasty meconium diapers and letting baby girl sleep on your chest.

I love that you change cloth diapers, even the nasty dirty ones, even though you swore you would make me do them.

I love that you are my partner in parenting and that you've never seen any of it as 'my job' or 'your job.'

I love the way our children feel so safe when you're there and the way they love to snuggle with Daddy.

I love your patience and your gentle discipline.

I love when you read the Bible and pray with our kids.

I love that you always know how to say things to them in a way they understand.

I love that when you run an errand, you take a kid with you whenever you can.

I love that you're always more than willing to let me take a night off and go out while you're home with the kids.  I don't think you've ever complained about that.  Even once.

I love that the most important thing to you is not how smart our children are or how athletic they are, but our childrens' hearts and that they learn to follow Christ.

I love that your family is your priority and that you're always looking for ways to spend more time with us.

I love that you work so hard so that I can stay home with our kids and that you tell me all the time that you know being at home is hard work too. :)

I love that you read parenting books and books on newborn sleep schedules when I ask you to.

I love that you're around and that our kids really know you and you really know them.

I love that you love me with all your heart and that you see loving me well as one of the most important things you can do for our children.

I love that there's so much more I could add to this list...


I love you.  I'm grateful every day that God chose you to be these kids' daddy and that I get to be the one by your side.  Every day.  For the rest of our lives.

Happy Father's Day

Monday, June 13, 2011

Chitty Chitty Bang Bang

Have you ever rewatched a movie you loved as a kid and realized just how awful it was?

One of our family favorites as a kid was Chitty Chitty Bang Bang.  You may remember it as a movie about a special car that could morph into a boat or a plane... Or maybe you remember...
Uhm, the child-snatchers.  A scary man with a long nose steals all the children and locks them away so that the king can have all the toys for himself.  I wonder how many of my childhood anxieties originated from that movie.  Seriously.











 

My daughter watched it the other day and was enchanted with the story.  (b/c  most of the movie is really really good)  I should say, we're normally very picky about what she watches right now.  She'll have more freedom one day, when we're able to have conversations with her about the content and she's better able to separate reality from fantasy.  But right now she's a 4 yr old little girl with a very active imagination and a lot of movies just scare her.  Like for weeks.  No months.  Because she also has a mind like a steel trap and once something scares her, it sticks.  Somehow this one slipped under the radar.


Here's how the conversation today went:
D: Hey Mom, where was that castle from the movie?
Me: Hmm, I think it's in Germany.
D: I don't want to go to Germany.
Me: Why not?
D: Because that mean lady might try to take me away from you!
Me: Oh honey,  that was just pretend...
D: I know what we can do, Mom.
Me: What?
D:  We can ask her if she swims, and if she says 'no', then we'll put her in the river.  Then she'll never come back.  Right mom?

I have no words.

I really wish I could tell you I found a way to make this a really awesome teachable moment. I didn't.  I bought her a milkshake and changed the subject.

Thursday, June 2, 2011

Super Awesome Glaucoma News

Eye Pressure.  Something I never used to think about.
But with a husband and a 2 yr old, both of whom have congenital glaucoma, those two words have become something we think and talk and worry about regularly in our house.

Quick tutorial.  There are several ways the doctor checks your eye pressure. 

Most have probably experienced the awful puff of air in the doctor's office.  Hate it.  And apparently?  it's not even all that accurate.

The second way is by putting numbing drops in the eye and then manually checking it with some sort of device.  For adults, you put your chin on this strap and they "get really close to your eye."  That's a lie.  They touch your eye to get the pressure.  They just don't want you freaking out.  Kids aren't so great at putting their chin in the strap and keeping their heads still.  So they have a device called a tonopen.  Numbing drops are still required, and they tap the eye with the pen.

For us, this looks like me holding Kyler in my lap and holding down his arms and trying to distract him while the doctor holds his eye open and touches it with a 'beepy pen.'  If the kid is struggling or tense, the eye pressure can be affected and you may get a false pressure.

I'm sure you can imagine how fun this is. 
Thankfully, by God's grace, Kyler is actually getting pretty good at this, but still it's hit or miss.  If they can't get good pressure in office, right now the standard procedure is to put the kids under anesthesia to check pressure.  Several times a year.  This isn't cheap, and I just hate the whole process.

BUT there's a tool that is better than all of these. The icare tonometer.  Our old amazing doctor in Pennsylvania had it so when we moved to Texas it was a priority to find an ophthalmologist who had this tool.  It does not take numbing drops and we've found our kids are just much less freaked out by it because they don't see something coming toward their eye in the same way.  We checked pressure while Kyler was drinking a bottle when he was little and then transitioned to juice and a bendy straw when he was older and he'd let the doctor check his pressure with no fight at all. 

The problem?  Although this tool is relatively cheap in the world of medicine. Not one pediatric ophthalmologist in Texas had it.  Not one.  The tool that could work for hundreds of patients costs just under $4000.  Putting one kid under for a pressure check is over $2000 each time.  But our insurance covers the anesthesia and the office would have to foot the bill for the icare tonometer.  hmm...

We actually considered buying the tool ourselves since all 3 kids need regular pressure checks because of the family history.  We hadn't taken that step yet and I've just been pressuring encouraging our doctor to check out the new tonometer, as she has a good number of patients with congenital glaucoma.  We even had our small group Bible study praying they'd decide to buy the tool. :)
And...at the last appointment, she told me it was officially in the budget for this fiscal year!!!


I'm so relieved.  And thankful. 
So is this guy.

Memorial Day

After a month filled with surgeries and doctors appointments.

We feel so blessed and thankful.

For eyes that see and are healing.
















that we're DONE with eye drops!



 For family that lives close by to help




For moments to just be together





For watermelon.







Surgery Updates:
Kyler is doing great!  Stitches are out and his incisions are healing nicely.  He was able to come off eyedrops completely for now and we go back in a month to make sure his pressures are stable off meds.  Praising God for a break from those meds we've been doing twice a day since he was 4 months old.

Conor's eye is healing well from the micro-shunt they put in.  We're praising the Lord the doctor was able to get it in at all so the fact that it's doing so well is huge!  The pressure in his eye is way too low still(it's at a 2), which is just a side effect of the new shunt and it should level out  BUT until it does, he's not allowed to bend over or lean forward at all or lift anything over 10 pounds...which means no lifting kids.  Ha! Also low pressure makes your vision pretty blurry so he's not able to drive (obviously) until it clears.  He's taking it easy and since he can't work on the pools right now, we're enjoying having him around an extra 30 hours a week or so. 

We're also taking a trip to Houston once a week for his follow-ups right now and we're SO glad to have Nana & Papa and Gram & Pappy around to love on the kids while we're out of town.


Specifically, if you could pray his pressure safely increases over the next week or so.  We'd like to see it be at least a 6 by next Friday!  And if you could pray for extra stamina and discipline for me over the next couple weeks, I'd sure appreciate it.


Thankful we're not walking this road alone!